Azithromycin-500mg-1 tab mon,wed,fri
Ciprofloxacin- 2 per day rotate with Tobi inhaled
Creon Enzymes-24,000 4-5 caps w/meals, 2-3 caps w/snacks
Nexium-40mg-2 per day
Somac- -1 per day
Inhaled medications are a big part of CF management, treatments can take between 8mins to 30mins depending on medication and devise. This is the part that drives me crazy, I could think of 100 things I would rather be doing!
Hypertonic Saline-6%-twice per day
Pulmozyme-2.5 mg- 2-3 times per week
Tobi Antibiotic twice per day rotate each month with oral Ciprofloxacin
Symbicort-160/4.5 mcg-2 puffs twice per day
As part of the holistic approach to CF care every 3 to 6 months bloods are drawn and accessed for vitamin and mineral deficiencies. Due to the lack of absorbency of fats in a CF diet, supplements are recommended to maintain healthy vitamin and mineral in the body. The list below comprises both those recommended by my specialist and some introduced through my own research.
Acidophilus– is a bacteria that exists naturally in the body. It helps maintain an acidic environment in the body, which can prevent the growth of harmful bacteria in the gut.
Vit ABDECK– The fat soluble vitamins in Vit ABDECK are in a water soluble form making it easy for people with CF to absorb, this vitamin also contains zinc.
Calcium– Lack of sufficient nutrition in people with CF can cause osteoporosis. A calcium supplement is a common supplement for most people with CF.
Curcumin– is said to have powerful anti-inflammatory effects and to be a very strong antioxidant. I will be trialing this over the coming year.
Chia seeds– are loaded with nutrients. Chia seeds have fibre, protein, fat (omega-3s), calcium, manganese, magnesium, niacin, potassium, phosphorus, zinc.
Fish Oil– People with CF are prone to arthritis; fish oil may help support this.
Glutathione is a naturally occurring antioxidant that helps maintain the immune system. Scientific evidence suggests CF patients have reduced levels of glutathione in their lungs. I will be trailing this in the coming year.
Iron– I am often low in iron so take a supplement.
Magnesium– helps to maintain normal nerve and muscle function, supports a healthy immune system, keeps the heart beating steady, and helps bones remain strong. It also helps regulate blood glucose levels and aid in the production of energy and protein. Research suggests that oral magnesium supplementation helps improve respiratory muscle strength. http://www.ncbi.nlm.nih.gov/pubmed/22648717
Salt tablets– People with CF are at risk of increased loss of sodium and chloride (the two compounds that make up salt) especially with exercise, fevers, infection and exposure to high temperatures.
Vitamin D3– Vitamin D and calcium work together to support bone health. To maintain normal Vitamin D levels, some people with CF require Vitamin D supplementation.